Minnesota Prairie Roots

I TOOK A FIELD TRIP TODAY. Not the fun sort like my granddaughter, Isabelle, took Thursday to see a performance of “The Adventures of Tortoise and Hare” at the Ordway in St. Paul. Rather mine was into the outdoors, outside a physical therapy office in Faribault.

Friday marked my seventh vestibular rehab therapy session with Ryan at Courage Kenny. I started weekly therapy in mid April after being diagnosed with vestibular neuronitis and Meniere’s Disease. These are complex diagnoses which affect the vestibular system in my right ear. (Click here to read an earlier blog post that details my many symptoms.) Basically, therapy is retraining my brain to handle the deficiencies I’m now experiencing due to damage to my eighth vestibular nerve. And to think this all started with a viral infection in January.

Back to today. Typically I meet with my physical therapist in a small room where we review my symptoms and progress and I learn, and practice, new exercises. Last week we ventured into a long hallway so I could walk back and forth, moving my head from side to side and then up and down. I didn’t do so well, veering to the left and into the wall. But I practiced at home all week, as I do all exercise homework Ryan assigns, and I felt I was doing better. I am determined to do everything I can to reclaim my life, or at least some version of what life was before these health issues.

OK, WE’RE TAKING THIS OUTSIDE

Then Ryan announced we were going outside to try this walking and head turning activity on the sidewalk. I started out not so well, again steering left. Being outdoors added sensory input I wasn’t used to experiencing inside a small room. This exposed me to a real world environment. One with chirping birds and traffic and people crossing the parking lot and trees and clouds. Just a whole lot for my brain to try and manage. Once I’d semi-managed the sidewalk, we moved onto the lawn. Another new landscape to take in while I moved my head and attempted to walk a straight line.

That was my field trip. A change-up from a controlled environment. My ability to handle my symptoms has assuredly improved with therapy as Ryan nudges me to push myself more. And I am. I’m out and about some now, trying to do things I once didn’t think twice about doing. Trips to the grocery store, big box stores, a walk in the park, doing photography, simply being among people. It’s not always easy, especially when symptoms flare. Sometimes I fail. I recognize my limits. That includes time on the computer. Too much online time and my head begins to hurt, my vision blurs, I see double. Because of that, I’ve been publishing fewer blog posts.

YES, IT REALLY IS IN MY HEAD

Yesterday my dear friend Beth Ann, whom I met when she lived in Iowa but who now lives in North Carolina, blogged about vestibular neuritis/neuronitis. I had no idea she was going to write this and then designate the Vestibular Disorders Association as the beneficiary of her monthly “Comments for a Cause” project. (Please click here to read Beth Ann’s well-written, informative blog post.)

Each month Beth Ann chooses a different group or nonprofit to feature and support with a financial gift. I was humbled by her desire to increase awareness of vestibular issues. And, bonus, she enlightened me about the Vestibular Disorders Association which, at quick glance, will be a valuable resource as I navigate my diagnoses. I feel validated just scrolling through the website, like I want to shout, “This is real! This isn’t just in my head. It really, truly is in my head!”

GOING TO CHINA WITHOUT GOING TO CHINA

Earlier this week I endured an MRI per my neurologist’s orders to assure nothing else is going on inside my brain besides the already-known. I get results on Wednesday. He’s confident nothing additional will be found and I hope he’s right. While in that machine for an hour trying to manage the blasts of overpowering noise (I’m hypersensitive to sensory input), I remembered Ryan’s advice to “dig deep” to get through the procedure. I think I dug a hole all the way to China.

 Next week I will need to dig deep again to get through another hearing test, followed by an appointment with the ENT given persistent, intermittent ear pain and more. I’m documenting my symptoms (once a reporter, always a reporter). And I’m hoping for answers as I press onward, preferring not to travel internationally again.

© Copyright 2023 Audrey Kletscher Helbling