Minnesota Prairie Roots

I HADN’T PLANNED on writing a third post related to my health issues following a case of suspected COVID in early January. But then blog readers shared their experiences with the virus and I felt compelled to write more, to offer insights and, most importantly, hope.

In this sharing of stories in the circle of my blog, I’ve learned that some of you have endured symptoms similar to mine. Keith in New York City. Diane in Iowa. And then Beth in Michigan with an altered sense of smell.

In the aftermath of COVID infections, there’s still much to learn. I quickly recognized that during my struggles and also via your stories. Answers don’t come easily. Help can be elusive. Frustration and despair set in and it’s a challenge to be heard, to remain hopeful. Telling our stories is important, necessary.

THE NEED FOR VALIDATION, FOR SUPPORT

I remember telling my physical therapist, Ryan, early on that I felt unseen because I was dealing with unseen neurological issues few seemed to understand. But when he compared my symptoms to those of someone with a traumatic brain injury, I felt validated. That’s all I needed, an affirmation that this was real, not just in my head. But it literally was in my head, in my brain.

My sister-in-law Rosie, who endured two concussions following falls, was (and is) among my biggest encouragers. She understands my symptoms, especially my inability to tolerate sensory overload. Having a key empathetic person is, in my opinion, vital. Likewise core family support is essential.

GETTING HELP & SETTING GOALS

But personal support only goes so far. I am fortunate to have a primary care doctor who listens, shows great compassion, admits when he can’t help me, and referred me to specialists. My many office visits extended well beyond the allotted 20 minutes. Vestibular rehab therapy set me on a course to better health. I started therapy in mid-April. That continued weekly until mid-September. Therapy worked in retraining my brain, in helping me manage my symptoms.

On my final day of therapy in September, I told my therapist that I had three immediate goals: to get my hair cut, to return to worship services at church and to dine in a restaurant. Within two months, I accomplished all three with varying degrees of success. I share this to offer hope.

Here’s how I managed: I alerted my hair stylist to my sensory issues pre-appointment. Donita turned off the salon music and took care overall to minimize sensory input. Worship has proven a bit harder, especially managing the organ music, which often assaults me like a tsunami. Even with an ear plug, I struggle. I’ve learned that my brain struggles most in the early mornings and evenings and in busy environments. Restaurant dining remains challenging, although I managed in a quiet chain restaurant. I have yet to try a homegrown, noisy restaurant.

HOLDING HOPE

There is hope. Always hope. It is, and has been, my go-to word through many struggles in life. For any of you struggling with post-COVID health issues, I hope I have offered you hope, or at least validated what you are experiencing.

WAYS TO ENCOURAGE

For those of you who know someone dealing with long haul COVID, please support your family member or friend. Listen. Mail a greeting card. Text or call with encouraging words. (All helped me mentally; thank you, readers.) What we are going through may not be seen. But it is real, all too real.

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FYI: To read my first post, “How COVID changed my life,” click here. To read my second post, “Retraining my brain post-COVID,” click here.

© Copyright 2023 Audrey Kletscher Helbling