Minnesota Prairie Roots

Writing and photography by Audrey Kletscher Helbling

The realities of sleep deprivation, my story April 28, 2023

Filed under: Uncategorized — Audrey Kletscher Helbling @ 5:00 AM
Tags: , , , , , , , ,

The last Prednisone pill in my 14-day regimen of 68 pills, 10 mg per tablet. (Minnesota Prairie Roots copyrighted photo April 2023)

I HAVEN’T BEEN THIS EXHAUSTED since last giving birth 29 years ago or since enduring a three-month severe bout of whooping cough in 2005. But the past two weeks, I’ve experienced such a sleep deficit that I feel like a mom with a newborn or a woman with an uncontrollable, body-wracking cough unable to sleep. I feel absolutely, utterly sleep-deprived to the point of wondering how I can function.

The culprit? Medication, specifically the anti-inflammatory steroid Prednisone. For 10 days I took 60 mg daily. Then I tapered down over four more days to 10 mg on the final day, Tuesday. Prednisone has horrible side effects, the primary one being insomnia. I managed several hours of sleep most nights. Do the math and I am basically 70 hours short of sleep over a two-week period. That’s a lot. Enough to mess with my mind, my body, my mental and emotional health.

From the get-go, I hesitated to take this drug prescribed by my ENT doctor. I have been on Prednisone twice previously and understood it would wreak havoc with my body. Besides insomnia, the med also causes restlessness and an irregular heart beat in some people. I am “some people.” But I also understood the need to reduce inflammation, specifically an inflamed vestibular nerve in my right ear that controls balance. I’ve been diagnosed with Meniere’s Disease (related to previous sudden sensory hearing loss in my right ear) and vestibular neuronitis (caused by a virus I had in January). For now, Google my diagnoses; I’ll follow up with a second post next week.

POWERING ON & COPING

After the first few awful days on Prednisone, I messaged my doctor about my struggles. She suggested I taper off earlier if I just couldn’t handle the side effects. Reading between the lines of her telling me insomnia was a common side effect (yes, I know that), I decided to continue on with the med as prescribed. I could, I encouraged myself, power on through this. And, I did. But it wasn’t easy.

When I found myself wide awake after only a few hours of sleep, I exited the bedroom for the living room recliner. (No sense keeping Randy awake with my tossing and turning.) I coped by coloring. I coped by working crossword puzzles in the middle of the night and in the wee hours of the morning. I drank tea. I used a heating pad. Reading proved impossible. Sleep proved impossible. On and on the hours went until daylight began to break and light seeped into the room and the pace of traffic picked up along our busy street.

And so this has been my state of being. Mostly exhausted. All the time. Between dealing with med side effects and symptoms of my diagnoses—especially sensory sensitivity, tinnitus and feeling like someone slapped me on the right side of my head—I often feel overwhelmed. My brain is working overtime to deal with everything. But I am determined to power on. So I write when my vision allows me to do so. I need the distraction, the mental escape, the act of creating which sparks joy within. I do my vestibular rehab therapy exercises designed to retrain my brain. I’m seeing some improvements, pushing myself just to the edge, as my therapist advised. I recognize my limits.

CLARIFICATION & GRATITUDE

I’ve asked my husband to stop telling people I have vertigo, even if he says at least they can understand that. I mostly don’t have vertigo anymore (which, for me, was only when arising or turning in a supine position). My symptoms are much more layered and many.

It’s complicated and a lot and not something most people “get.” I’ve learned a lot in recent weeks. For those who attempt to understand and have reached out to me, I feel grateful. Compassion, care and connecting uplift me as I continue on this journey of retraining my brain, managing, coping. And maybe, just maybe, soon getting eight hours of sleep in a single night. Onward.

© Copyright 2023 Audrey Kletscher Helbling

 

Back to school for tired teens January 3, 2011

Filed under: Uncategorized — Audrey Kletscher Helbling @ 10:25 AM
Tags: , , , , , ,

JUST WHEN YOU THOUGHT the celebrating had ended, along comes today, Festival of Sleep Day.

I don’t know about you, but I could sure use some extra sleep. I never get enough. I blame that on aging and the necessity to get up nightly to pee, which disrupts my sleep.

But I don’t want to make me and my sleep issues the focus of this post. Rather, I want to highlight the topic of teens and sleep.

I made some interesting observations during the holiday break, when my 16-year-old son didn’t have to get up early and out the door to school. He was pleasant, actually pleasant. No crabbiness, for the most part. No disagreeable personality, for the most part. And, he willingly assisted with household tasks without resistance and complaining.

I liked, really, really liked, the teen who has lived here for the past 10 days or so. (That’s not to say I don’t like/love my boy. I do. But those of you who are parents of teens will understand exactly what I mean.)

So when this morning arrived and my son had to roll out of bed for his first day back at classes, I wondered which boy would greet me. It was the tired, I’m-not-happy-to-be-awake-this-early son. No surprise there given my high school junior stayed up late last night doing homework, although he said, “Not that late, mother.” I know what that means.

Let’s just say that he left his homework until Sunday, despite my strong, very strong, suggestion that he work on it earlier in the week. I’m going to derail again here and ask, “Why do teachers assign homework over holiday break?” Honestly, are they working on work when they’re on vacation? Maybe. My guess would be most likely not.

ANYWAY, BACK TO THAT SLEEP TOPIC. To my son’s credit, he slept in only until 10 every morning of break except for the first day and the last two days. Typically, he would slumber as late as he wished, which would be until about noon. But this time, this vacation, he set his alarm for 10 each morning and I give him credit for that self-discipline.

His dad and I have, for a long time, encouraged him not to sleep in so late, especially on weekends, because that just throws off his whole sleep cycle. He never understood that, up until now.

Based on my teen’s mood and sleep pattern, I’m convinced that, for him at least, starting school at about 9/9:30 a.m. would be a better physical and psychological fit. I’ve read and heard repeatedly that teens would do better with that later school day start. I can’t cite those sources right off the top of my head, but if you research the topic, you’ll find the studies to back up that statement. (Or just come and live at my house for awhile.)

I’m not holding my breath waiting for a change in high school start times locally. I don’t think that will happen, and certainly not in the next 1 ½ years, when my 16-year-old would benefit.

Once my son is off to college, I expect he won’t take too many 8 a.m. classes. But that’s OK. Then he can adjust his schedule to his natural sleep patterns and needs. Even without the teenage factor, he’s more of a night person, than a morning person.

That brings me full circle back to today and the Festival of Sleep Day celebration. I have no idea where this fest originated and had not heard of it until yesterday. But I think I’ll celebrate this afternoon by, maybe, taking a little nap.

© Copyright 2010 Audrey Kletscher Helbling