…I THOUGHT I WAS such a good mother. I baked a cake and a pie every night. Or at least had Jell-O with whipped cream.
That quote from Mimi Galvin, mother of 12, struck me as particularly personal and profound in a 377-page book focusing on one family’s experiences with schizophrenia. Six of Mimi and Don Galvin’s children developed schizophrenia, labeled by author Robert Kolker as “humanity’s most perplexing disease.”
Kolker’s Hidden Valley Road—Inside the Mind of an American Family rates as a difficult read. But this 2020 Oprah’s Book Club pick is something every single person should read to understand the depths and intricacies of a biologically-based brain disorder like schizophrenia. And how it affected one Colorado family with children born between 1945-1965.
But back to that quote and the context thereof. Doctors and others blamed Mimi for her sons’ mental illnesses. Their criticism left her crushed, traumatized, paralyzed, ashamed. Feeling all alone and guilty, as if she wasn’t a “good mother.” Such was the accusatory thinking of medical professionals. Mothers, especially, were targeted and even labeled as “schizophrenogenic mothers.” Can you imagine? Movies like Alfred Hitchcock’s Psycho (released in 1960) reinforced that theory with Norman Bates’ mother blamed for his delusional homicidal mania.
This was also the era of shock therapy and restraints and so much misunderstanding and horror. Even unafflicted Galvin siblings wondered why their brothers couldn’t simply snap out of it. That thought pattern seems almost laughable, even absurd, to me. Yet, too many people still think that. Why can’t someone simply shut out delusional thoughts and paranoia, stop talking gibberish, separate perception from reality, silence the voices in their head, go to sleep rather than stay awake all night…? And more, much more, detailed with heartbreaking truth in this story of the Galvin family.
This family experienced heartbreak almost beyond belief. Tragedy. Abuse. Violence. Disconnect. Feelings of abandonment. So. Much. Trauma.
If I ended this review now, you would likely feel incredibly disheartened, wondering why you would even want to read such a book. And you would be justified in thinking that. But this story of an American family in the thick of schizophrenia is also inspiring. Hopeful. The Galvins allowed researchers to study their DNA, to learn more about “humanity’s most perplexing disease.” A disease centered in the brain. A disease with genetic markers. Mutations. A spectrum illness. No more mother/parent blaming.
I won’t attempt to further explain those scientific findings. I’m not, as I term myself, a medical person. I had to read and reread the medical parts of this book. But I grasp the basics. That researchers, although too often hindered by lack of funding (including from pharmaceutical companies), continue to work on researching and understanding schizophrenia, on finding better medications to treat symptoms and, ultimately, to prevent the onset of this horrible disease.
I encourage you to read Hidden Valley Road. You may struggle to get through this story. But press on. And then, when you’ve finished, vow to love, support and encourage anyone dealing with mental health issues. And their families.
FYI: May is Mental Health Awareness Month. If you or someone you love is struggling with mental health, seek help. The National Alliance on Mental Illness, which originated in Minnesota, is a good place to start. I will continue to do what I can to advocate, educate and increase awareness.
I invite you to read three previous reviews I’ve written on books that focus on mental health:
© Copyright 2021 Audrey Kletscher Helbling