I READ THE BOOK in a single day. That should tell you something. Fix What You Can—Schizophrenia and a Lawmaker’s Fight for Her Son by Mindy Greiling is an incredibly powerful book. It is painfully honest, deeply personal and informative. A must read, whether you know little or a lot about people with serious mental illnesses.
Greiling writes about the flaws in the mental healthcare system—from lack of providers and treatments and options to poor communication to the struggles families face, too often alone.
You will cry with this mother as she shares the challenges faced by her son, Jim, diagnosed with schizoaffective disorder and also a substance abuser. You will feel her pain, her fear, her anger. This is her story. Jim’s story. Her family’s story. Maybe your, or a loved one’s, story.
GRIEF. ANGER. ADVOCACY.
Mindy writes of transitioning through the stages of grief. From anger to advocacy. Not because her son has died, but rather grieving the loss of what may have been if not for Jim’s disease. She takes her personal experiences and uses her position as a state representative to effect changes in Minnesota laws and ways in which people view mental illness. She became involved in the National Alliance on Mental Illness. She became not only Jim’s advocate, but an advocate for the broader base. All the while managing her own fears and feelings of being alone through all of this, of experiencing trauma.
Imagine if your son heard voices directing him to kill you. Imagine if your son suffered from paranoia. Imagine if your son had to get off the one most effective medication for his disease because side effects could kill him. Imagine…
This was/is reality for the Greiling family as Jim continues to navigate life and his disease. But it is also a story of hope and resilience and the strength of not only Mindy, but of her son. She recognizes that, even with schizoaffective disorder, Jim is capable of so much. She believes in him. Never gives up. You will see that repeated throughout the pages of this book written by a determined and caring mother faced with crisis after crisis.
There is no fairy tale ending to this story. Jim’s is a life-long disease with no cure.
PUTTING A FACE TO A DISEASE
I admire Mindy, who sought her son’s input in writing this book released in early October. I admire Jim’s strength in the public telling of his story. Such first-hand accounts make an impact, take a disease beyond statistics to a face. An individual. A family. This is a mother trying her best to secure help for her son, to advocate when needed, to make tough decisions when necessary. This is a family in need of understanding and support, all too often missing when it comes to mental illness. When Mindy’s husband, Roger, emails extended family and asks them to send get well cards to Jim in a hospital psych ward, my heart breaks. But this is too often reality. Families feel alone, without much-needed support from family and friends.
LEARN. LISTEN. SUPPORT.
I encourage you to read Fix What You Can—Schizophrenia and a Lawmaker’s Fight for Her Son published by the University of Minnesota Press. And then, when you’ve finished, reassess how you feel about individuals who are dealing with mental illness. Consider that they did not choose these brain diseases, just like people do not choose cancer.
There is much to be learned from the Greiling family’s story. We’ve come a long way in opening up about mental health. But so much remains to be done. We need more mental healthcare providers. (Mindy writes of a six-week wait for Jim to see a psychiatrist, more common here in Minnesota than uncommon.) We need more programs. More funding. More housing and treatment options. More training for law enforcement. More understanding and compassion. And support. We can pledge, as individuals, to educate ourselves about mental illness and then to take that knowledge and be that person who sends a card, listens, prepares a meal…for an individual/family in need of our ongoing care, compassion, understanding and support. A family like the Greilings.
© Copyright 2020 Audrey Kletscher Helbling